Remembering Hannah Deacon, Society Co Founder & Director
May 9, 2025 | IN NEWS | BY Kate Thorpe
To all members of the Society, our Supporters and friends,
It is with profound sadness that we share the heartbreaking news that our Society Director and Co-Founder, Hannah Deacon, passed away on Tuesday 6 May, surrounded by those who loved her, after a short and brutal illness. She was just 45.
This devastating loss to Hannah’s beloved partner Drew, and children Alfie and Annie, is impossible to put into words.
Hannah was remarkable: determined, tenacious, and fiercely compassionate. Her fight to find treatment for her son Alfie’s rare and severe epilepsy led to a breakthrough that changed his life and ultimately changed the law. She went on to transform the lives of thousands of patients and families, never stopping in her work to push for better access, better care, and a better understanding of medical cannabis.
More than anything, Hannah’s most proud and important role was being a mum. Alfie and Annie were her world. She adored them. Everything she fought for came from her enduring love for them and wish to make the world kinder and fairer.
Hannah was our brave, beautiful partner, daughter, sister, and friend. She made us laugh, made us think, and made us feel stronger just by being there. All of us are better for knowing her. We only wish we could have had more time.
We will share more in the days ahead to honour Hannah’s life, her work, and the legacy she leaves behind. We want to reassure you that the Society will continue, just as Hannah wanted.